Hello and welcome to the UK Adult ITP Registry Website. The site is designed to assist haematologists who want to take part in the UK Adult ITP registry, as well as providing additional information which will be of interest to patients with ITP.
Aims: to collect clinical information (age at onset, bleeding symptoms, treatments given and responses), standard lab tests, and investigational assays. All this information will be analyzed looking for associations between the presence of genetic variations and (i) development of ITP, (ii) responses to treatment, (iii) severity of ITP and several other parameters. We are keen to involve as many UK centres as possible.
Revised Adult ITP Registry Protocol: We encourage all collaborating centres that have not already done so, to file for local R & D approval for the latest version of the protocol (version 2.4, 12th September 2018). The latest version of all the current documents in use can be found here. [attached is the compressed folder with all the documents].
For Registry or drug trial information please contact us.
Adult ITP Registry database: Click HERE to go to the UK Adult ITP database for data entry.
The team from left to right: Haroon Miah, Vickie McDonald, Sue Robinson, Drew Provan, Caitlin Gracie and Atiqa Miah